All requests for access to and/or use of ORIGINS data and biological samples are encouraged from new researchers.
Researchers working at one of the contributing institutions (Joondalup Health Campus or The Kids) or third-party researchers, who are external to The Kids and Joondalup Health Campus, can request access to the data and samples.
All new sub-project applications require a completed Research Proposal to be submitted to ORIGINS Project Management Group and Scientific Committee for review and approval. This will allow ORIGINS Project Management Group and Scientific Committee to assess:
- The viability and feasibility of the research (e.g., timeframe, available resources, budget)
- Any potential overlap with currently approved Sub-projects
- Whether the research questions, aims and objectives are consistent with the goals, vision and strategy of ORIGINS
- Whether the methods and sample size are appropriate and justified
- Whether the number of Participants and/or volumes/biological samples requested are justifiable in terms of participant burden and impact to the finite ORIGINS Biobank
- If the research team are suitably qualified and experienced to implement the proposed sub-project
- If there is sufficient community and consumer input
A “sub-project” refers to a nested research project or study that is incorporated into and/or connected to ORIGINS via access to and/or use of the ORIGINS cohort or database.
Review and download our Research Proposal Form
See our sub-project approval process here
Sub-Project Approval: An eight-step process
- Complete the Research Proposal Form
- Submit the research proposal to ORIGINS (origins.research@thekids.org.au). An Administration and Access Fee quote may be provided at this point, to include in the budget, noting that this may be subject to change depending on the final approved sub-project. Data/sample requirements may be discussed with relevant ORIGINS team members to confirm availability/feasibility.
- Present the research proposal for review by the Scientific Committee and ORIGINS Project Management Group. The Scientific Committee and ORIGINS Project Management Group will require specific information regarding sample size, method and time of recruitment, program content, resourcing, timeframe, specific requests of ORIGINS and detailed background/rationale with references.
- Incorporate any feedback from the review and provide responses to feedback (a second round of review may be required depending on the nature of the sub-project).
- Provisional approval will be granted upon endorsement by the ORIGINS Scientific Directorate. Full research ethics approval must be obtained from an NHMRC-registered Human Research Ethics Committee of the researchers’ choice.
- All ORIGINS sub-projects are required to enter into either a Sub-Collaboration Agreement or a Letter Agreement, depending on the nature and scope of the project. These agreements clearly outline ORIGINS’ expectations, obligations, and reporting requirements.
- Full approval for the sub-project will be granted upon completion of all steps outlined in the provisional approval letter, including submission of essential documentation and confirmation of payment.
- A ‘Welcome to ORIGINS’ meeting is then held to start the project implementation process.